Event Title: An Ethics Enigma? Consent, Privacy, Return of Results and Whole Genome Research
Event Date and Time: Monday, January 11, 2010, 4:00-5:30
Event Location: Forum Hall, 4th floor of Palmer Commons
Event Description: Whole genome research generates a host of research ethics challenges. While many of these issues are not new or unique to whole genome research, the massive amount of personal genomic information that is generated by the work both intensifies the issues and makes their resolution a more urgent policy dilemma. In this talk, Professor Caulfield will touch on a number of the most pressing issues. For example, should researchers have to get consent from the close biological relatives of a research participant before they sequence and/or publish a whole genome? Do they need to get consent for every research project or can researchers simply obtain a broad consent for future use? And what about incidental findings? What information do researchers need to return to the research participant?
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